Patient Advocates
US HAEA Patient Advocates
Meet Your Patient Advocates!

We are either HAE patients ourselves or caregivers for HAE patients. We understand what it means to live with HAE.

HAEA Patient Advocates provide assistance that includes physician referrals, peer-to-peer support, guidance on access and reimbursement for your HAE medicines, and more.

We provide a wide range of personalized services for HAE patients and their families – we are here for you!

Important: Patients with the slightest hint of throat swelling should seek immediate medical attention (call 911) to ensure that their airway is not compromised.

John Williamson
(972) 984-0621
Senior Patient Advocate

John covers Arizona, Idaho, North Dakota, Nevada, Pennsylvania, Texas, Wyoming. John is also responsible for clinical trial referrals.

Jenny Barnes
(252) 585-0763
Senior Patient Advocate

Jenny covers Alabama, Arkansas, Georgia, Illinois, Louisiana, Michigan, Minnesota, North Carolina, Oklahoma, & South Carolina

Sherry Swanson
(815) 274-4206
Patient Advocate

Sherry covers Indiana, Kansas, Maryland, Nebraska, New Jersey, New Mexico, Ohio, Tennessee, Washington & Wisconsin

Lisa Facciolla
(619) 723-7747
Patient Advocate

Lisa covers Connecticut, Delaware, Florida, Kentucky, Massachusetts, New Hampshire, New York, Rhode Island